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Hi rarity. I agree they shouldn’t be there (btw, my LDH and ALP are high too) and I get a bit annoyed at the hemo who assumes I don’t need to know things. I’ve been dealing with this for a while and it’s frustrating to be treated like a toddler.
He just said “no point doing a BMB, it’ll just show MDS”. Well, I might be a bit silly but I’m not stupid and I assume that if the blood cells start changing then the bone marrow is probably changing too. My transfusion requirement has increased too, just had second blood transfusion a week after the last one. Isn’t that what watch and wait is about? Monitoring and assessing and waiting for change so treatment can be implemented when necessary. Hemo said next appt in 3 months.
Sorry....ranting.
I hope you get some answers..I’ll sure be interested.
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