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We were told in research hospitals it was being used and for transplant (I'm sure other treatment as well) it helped w pain, loss of appetite and mood [go figure] if my husband wanted he could request it. He never did though. I feel like we're old souls but still pretty conservative for our age
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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