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Old Wed Apr 13, 2011, 06:24 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Treatment

Hi Neel,
You know MDS is not one disease but many diseases with some characteristic symptoms. This means that we are very different and respond differenly when we are treated with the same drugs.

The BMB has no effect on counts. They take out a tiny part of the marrow.

Neal and Ruth are true experts when SCT is discussed - they can answer all your questions.

I have a port since Jan 2007 for transfusions and Desferal for iron overload - now I only get it flushed once a month since I don't get transfusions or Desferal.

It is interesting that you have Dacogen and not Vidaza - in EU we have Vidaza but not Dacogen.

You get the injections in a daycare ward after getting some drug to prevent nausea. You are not isolated. Your counts can decrease and you will perhaps need blood, platelets and Neupogen for low white blood cells but that doesn't happent to all patients. Search for Dacogen in this forum and you will find that there are many patients that have had good results with that drug.

Hope your father's fever won't come back!
Kind regards
Birgitta-A
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