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Old Tue Jan 26, 2010, 07:43 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS info

Hi kishore,
Here is info about MDs from the MDS Foundation:
http://www.mds-foundation.org/pdf/handbook-english.pdf

Good that your father is getting red blood cells transfusions and EPO for his anemia. His HGB (6.4) is quite low. Do you know how his EPO level was before treatment? If his EPO was more than 500 treatment with EPO probably won't have any effect. He could perhaps get more frequent red blood cells transfusions?

The most important white blood cells are the neutrophils. Do you know his neutrophil count? The neutrophils are about 50% of the white blood cells so if you know the white blood cell count you can figure out the neutrophil count. If it is low (less than 1.5) your father perhaps needs drugs that stimulate the white blood cells like Neupogen.

When his platelets are so low (17 000) it is important that he avoids everything that can decrease platelets - many drugs - for example pain killers - decrease the platelets.

As you can see in the MDS Foundation info we have leukemia if our blast cells are more than 20% in the bone marrow.

Hope Dacogen will give good results?
Kind regards
Birgitta-A
70 yo, dx MDS Interm-1 May 2006, transfusion dependent from dx, Desferal and Exjade for iron overload, Neupogen 2 injections/week for low white blood cells, asymptomatic
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