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Old Fri Apr 1, 2022, 04:13 PM
Shroob Shroob is offline
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Join Date: Mar 2022
Location: Idaho
Posts: 16
Quote:
Originally Posted by mola-tecta View Post
Hello Shroob, I'm the person you were corresponding with on Reddit about our mothers I'm really glad you made a post here - this forum is really very quiet, but there's still some great people here and a LOT of information buried in the many years of threads.

Really hoping that you and your mother will be able to find a doctor who can start actually approaching this from a whole systems perspective. There is a lot to balance and I have experience with how specialist doctors can play "not my problem" when issues are complicated with multiple organ systems.

Please keep us updated with things at U of WA! And remember to take care of yourself as well.
Hi Reddit friend! I've been following your thread closely as well definitely spent a lot of time sifting through the forums. So many incredible stories.

Will do. Hoping they can get her in quick. As of yesterday they are now afraid her kidney is rejecting, which is not what we wanted to hear.

Take care as well. Thank you for your response
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Shroob, Daughter of Donna (age 59); diagnosed AA end of 2021; currently taking prednisone & tacrolimus. Polycystic Kidney Disease; received kidney transplant 2014.
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