|
I don't think Desferal is as bad for the kidneys as Exjade is. John had to stop Exjade because it was impacting his kidneys. He was on it for quite a while though.
Exjade has a stronger warning regarding kidney/liver toxicity. The only thing you can do is to try Desferal at low dosage and monitor kidney function. Then up the dose depending how well it's tolerated.
John never got to a full of either Des or Ex because of side effects. It's taken years to get his iron where it's at now. His was around 4500. He does small phlebotomies now.
The Cyclo is probably not helping his kidneys either and I know many who are on it say to drink plenty of water to flush them. Is there another immunosuppressant drug he can use?
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
|