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Thank you Marlene and Birgitta! Good information. Dad's hemo/oc has recommended we consult with a nephrologist. He is hesitant to start desferal with dad's reduced kidney function. I agree, Marlene, that we should give it a try and monitor his kidneys. They recovered pretty quickly when we stopped the Exjade.
The hemo/oc also has recommended trying Rituxan to see if it will help Dad's platelets and RBC. I am concerned due to the osteomyelitis, he's got another 6 weeks on antibiotics. So they will do a bone scan and MRI to see how the spine looks. I am so worried that suppressing his b-cells will result in the infection having an opportunity to flourish!
Plus, Rituxan side effects are scary!! Making these decisions is wearing me out. It's 4am - another sleepless night from worrying!
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