View Single Post
  #11  
Old Wed Apr 25, 2012, 12:25 AM
milliken2 milliken2 is offline
Member
 
Join Date: Apr 2012
Location: Ellwood City, PA. U.S.A.
Posts: 163
We are headed to the Cleveland Clinic on May 10th

Hello;
Sorry if I appeared irritated with Bebop - it's just that I feel that I am doing all I can - and not only the physical caring - I do all of the appointment making, questioning, etc - and sometimes I am overwhelmed - especially with his current condition - and finding out that the Pgh hospital did indicate in their bone marrow results of October which stated: "Overall, the findings are non-specific. Medications and auto immune processes etc. need to be considered. Due to cytopenias and pelgeroid cells a low grade myelodysplastic process should also be considered in the differential diagnosis, although it appears less likely. Correlation with cytogenic studies is therefore recommended." And no one ever recommended any more studies or testing.

Now - when we asked about the results of his bone marrow biopsy - we were told that it was "normal". I did not get these results until I called for them to take with us to the Cleveland Clinic on May 10th. We are seeing an MDS specialist there - Dr. Mikkahl Sekeres - and I hope he has more answers for us.
Earl starts his second round of Dacogen next week. He was transfused with 2 units of PRBC and 2 units of Platelets last week, and I am sure by the time he gets his blood drawn on Thursday - he will be at transfusion level. Actually - his Hgb wqs 8.5 yesterday - which is transfusion level for him, but the Dr. said he could wait until he gets his second blood draw on Thursday - so Friday will be a long hospital day for him for sure. He gets a chelating agent also - since he has had so many transfusions.
Thank all of you for your help.

Beth
__________________
Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS. and I can't help the one I love the most.
Reply With Quote