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Melissa, it would help to know a few more specifics about your situation. What are your current counts? Have you had no response to the ATG or is it just moving too slowly for you? How much cyclosporine are you taking, and why has your doctor decided that now is the time to do a taper? The answers to these questions will influence your decision about what to do next.
It is a very slow process. My husband is about 2 1/2 years from his last ATG and his counts have not yet returned to normal, but they continue to gradually improve. If you're having low Hgb issues, have you ever tried any EPO drugs (Procrit, Epogen, Aranesp)? High doses of cyclo can make you feel tired and interfere with clear thinking too.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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