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Hi Susan,
I started 5th round of Dacogen yesterday after 11 weeks off. My white count was up to 3.6 and HGB 12.4 (normal) so encouraging I hate to go back on treatments as I know it will lower counts again. I've actually had some energy back the last couple of weeks but I know it won't last. I will meet with my new oncologist next week (old doctor moved out of state) and I am anxious to see if she has any new suggestions. The plan as of now calls for Dacogen every 6 weeks depending on my counts and response.
AS I mentioned before I had 12 rounds of Dacogen three years ago and it did put me in remission. I hope you see the same results.
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68 year old female diagnosed July 07 MDS/AML. Treated with Dacogen 12 cycles. In remission 15 months. Relapsed Dec 09 back on Dacogen. Would like to hear others experience with Dacogen.
Radiation for Breast cancer in 2001 may have led to MDS.
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