To all who have posted:
I am a 56 year old grandmother of an 11 year old grandson. He has had
2 ATG treatments for Severe Aplastic Anemia. He was diagnosed in 2009
Right before his 9th birthday.. He had a one year remission... and one year to the day his remission started, it ended.. He is now transfusion dependent and has been put back on the Emergency Transplant list.. He has no compatabile
sibling or family member for BMT. He is full of courage and determination..
After a Benedryl, a platelet transufsion and , general anesthia for a bone marrow biopsey... He went back to school the next day,,, (defying the fact that his previous day's news was not what we had hoped.) He came home that day with "Student of the Month" Award.. (nothing to do with his illness, only his efforts to improve his grades from one marking period to the next.).
I pray every day for anyone afflicted with the "Roller Coaster" fate has sentenced to any family.. All I can do is pray.. (and I do.) for you all.. and your families... I will advocate for support for AA until my dying day.. Michael is my first, and only grandson.. and I only hope I can maintain the tenacity and courgeous spirit that he has surrounded himself with.. Medical technology cannot put this on the back burner.. It is becoming more prevelant that in years past... After all, they did discover a cure for Polio!
Thanks for listening..
