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Old Fri Sep 20, 2013, 12:48 PM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Hi Vikas,

She gets 2 units when her Hb falls below 7, it normally lasts 3-4 weeks and she is back to around 7 in this time. In the initial days, when we were all in denial that she could have MDS, we waited too long for transfusion and the Hb went down to 6.4.
Still I am not sure that 6.4 is the base Hb, it could be lower.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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