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Old Tue Apr 21, 2015, 10:58 AM
donna j. donna j. is offline
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Join Date: Sep 2011
Location: long island, new york
Posts: 110
Smile cbd for gvhd

Hi Marlene
Thank you for the possible resources. You are always a much appreciated wealth of information. I will review the material.
Donna

To Marlene and All:

I can't resist another question. After and during 8 phlebotomies, my ferritin rises back up. It initially was 5000 plus, did drop to 2350, go up to 2800, and currently is at 3400. My transplant Dr is not concerned but I am. I have begun photopheresis treatments (8 so far) for the gvhd. Do you have any suggestions? Thoughts? My Dr feels that cheleation therapy is not for me as I am generally drug sensitive.
This
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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