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Old Sat Jun 9, 2018, 02:30 AM
Tereze Tereze is offline
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Join Date: Jun 2018
Location: New york, ny
Posts: 1
New diagnosis, new member

I am newly-diagnosed with highest-risk MDS brought on by chemotherapy. Starting vidaza on Monday, but it doesn’t make much sense to me, as most of what I’ve read about vidaza suggests it is effective for a limited time, perhaps 2 years. At that time a transplant would be my only option. I’m 72. It seems to me it might be wiser to have the transplant as soon as possible.

I had pretty much made up my mind to ask my doctor about this... but I’ve just read details about the procedure, and it truly sounds... appalling. With ongoing risks; as if one is never really out of the woods. Yet without it I doubt I can live 2 years. I have a rich, lively life and a 3-year old granddaughter I want to see grow up! I keep returning to the thought that the transplant is really my only choice. I’m not ready to say, ‘ok, two more years, that’s it.’ And if I wait I’ll just be - older, and sicker!

But the transplant sounds - well, terrifying.

I’d be grateful to hear from folks who’ve had transplants, or anyone who wants to weigh in!

Thanks everyone...
Tereze
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