Thread: Need Help
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  #4  
Old Sat Nov 15, 2014, 01:14 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Missy, i'm so sorry for what your dad's going through and how it affects you and your family.

I do think exploring staying on a lower dose of cyclosporine might be worth while but it, like many drugs, is very hard on the kidneys. For anyone who has pre-existing kidney issues, especially so.

If you haven't already, I might suggest you have a real heart to heart with your Dad and ask what his wishes are & then proceed by fully following his wishes. After what I've been through, it was so reassuring to me that my family allowed me to make the choices with regards to my health care & treatments. Although it's difficult sometimes to do this, the patient is the one who I think should make those choices especially when things get tough...

Best wishes
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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