Robbie and Vickie,
I'm sorry that you need to be at this website, but I hope you can get some help and information for Lillie here.
If you haven't already done so, you should contact the
Aplastic Anemia & MDS International Foundation. Their
information packet includes "Aplastic Anemia Basic Explanations" and "Talking to Children About Bone Marrow Failure."
When Lillie was in the hospital for 3 days, was it at the
Siteman Cancer Center at Washington University (in St. Louis)? If not, will you go there for her treatment or for a consultation? That's the
comprehensive cancer center closest to you, and it has a
pediatric transplant program.
Dr. David Wilson is their Director of Pediatric Hematology/Oncology.