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Old Fri Jan 6, 2012, 07:56 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Wow, really! Another young expat in London with AA/hypo-MDS? First Dan posted earlier this week and I was shocked there was another like me, and now you as well! :O

Which hospital are you going to in London? I would highly, highly recommend having your BMB results sent to Prof Mufti at Kings College Hospital for analysis, if not a full-on referral for you to go there yourself. He's one of the leading MDS specialists in the world on MDS (and Prof Marsh at Kings is the same, but for AA). They handled my transplant there 2.5 years ago and I have nothing but praise for everyone there. I'm happy to say I'm back to full health now with normal blood, no GvH, and I'm running my first half-marathon in two months.

Also being an unofficial visa expert, I'm somewhat concerned about your NHS eligibility if you're on a short-term student visa, though, and any implication your illness might have on your studies, which could then impact your visa if you are no longer able to attend law school here. But I think the first thing to do is have your scheduled BMB and get those results analysed by an AA/MDS expert here, NOT just a haematologist. You really need to know more before you can start planning treatment or your future. Some cases move very rapidly, but plenty of others are in "watch and wait" for years without need for much more than the occasional transfusion.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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