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I had a MUD transplant for SAA a little over a year ago. I am feeling great. No GVHD, and back to my old self -- skiing, hiking, biking, swimming, etc. Off almost all drugs. No more immunosuppressants. After being transfusion- dependent for a few years pre-transplant, I haven't had to have a transfusion since I was in the hospital for my transplant a year ago. Yay!
I lost my hair (due to the chemo -- Cytoxan in particular) and used Buffs to keep my head warm. I highly recommend them. They are available online directly from the company, or through any outdoor store (REI, etc.).
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Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD.
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