[Mike Conlon]

Hi Vernette: Yes it can be very lonely because it just isn't possible for people to really know what we go through. I live in Zelienople, Pa. which is far from you but I am glad to correspond and if we can figure out a schedule I would be glad to call from time to time. I am so fortunate, dx in May 07, blasts 12%, low counts. Counts in good range, blasts below 2% by Nov 07, total remission Feb 09. I find the uncertainty going forward that is the most difficult. I am on Dacogen and it's approval is three years in May so there is not a vast supply of data to get any feel good vibes at this time. Just the fact that I am in remission feels good, but it would be nice to see historical statistics that would give me some idea of possible future outcomes. Marrowforums is a great place to learn more about MDS and it helps with understanding how other people are treated and also to know that you are not alone with MDS.