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Old Mon Oct 8, 2012, 06:16 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi Teo,
Then I understand why your mother have to wait for her blood. Still it could be interesting to know if she has irregular antibodies. When I received txs I always got a corticosteriod injection that hopefully should prevent the antibodies to cause hemolysis (the red blood cells burst too early).

As soon as your mother has had a third BMB that should tell us if she has MDS she could start EPO treatment. More patients respond if they get the combination with white blood cell growth factors. http://www.apocpcontrol.org/paper_fi...m%20Newman.pdf
If her doctor doesn't agree to that treatment EPO drugs alone are better than no treatment.

I am afraid that I don't know anything about Thalassemia - it is very uncommon in Sweden.

You can of cause ask the name of the drug your mother got 2 or 3 years ago but probably it was some kind of iron drug. As you are aware of that would not be the best drug for her today when we know that she has iron overload.
Kind regards
Birgitta-A
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