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Old Mon Sep 2, 2013, 06:47 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Dear Honey - Re "brain fog", that happened to me when I had 10% blasts and it went back to normal when they dropped. I, like you, was a public servant in a job where I did a lot of writing - I designed and developed training materials for firefighters, as well as being responsible for helping firefighting trainers to improve their skills. It was quite a high pressure job and it's scary feeling as though you are mentally "swimming in mud".

My workplace allowed me to work from home 2 days a week which reduced the fatigue from travelling an hour each way to work in the city. I retired in Feb this year after opting to take my remaining long service leave on 1/2 pay for 9 months. That gave me the opportunity to consider whether I should go back to work or retire. I chose the latter because I was 65 by then.

Sudoku is really good brain exercise and I regularly do puzzles.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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