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Neil: Thank you so much for reading & sharing your thoughtful, kind words. And, thank you for creating & curating this space for people with rare blood diseases to come together.
Matthew: I completely understand the frustration with the roller coaster. There are so many numbers and so much information to parse that it can be confusing and anxiety-provoking. I?m wishing you and your mom all the best in this difficult moment and sending love back your way. Being a caregiver can be extremely tough and I hope you are also receiving emotional and mental health supports as you navigate this illness.
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