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Hi Anne, My name is Rob and I was just diagnosed with MDS last month. My blood counts are very similiar to your husbands. I am supposed to start Dacogen Monday, however I need some outpatient surgery for skin cancer issues so I think it may be put off for now. From what I have read it sounds like the side effects of Dacogen aren't too bad for the most part. Good luck to you two.
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Rob, age 43, dx MDS Oct. 2008 <4% blasts, many abnormal chromosomes, STC Feb. 09
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