Quote:
Originally Posted by Lbrown
I will bring all this up with the internist when I see him, right now I am between doctors. Hopefully the new one can look a little more in depth at things that might affect energy levels and apply a few tweaks here and there. For so long this blood disorder has been front and center I think everything else got ignored. That's not good enough.
Deb
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Both of my docs (GP & Heme) are concerned & sensitive with Quality of life and other health issues. My heme told me his job was to keep me alive as long as possible with a good quality of life acceptable to me, not him.
Both my GP & Heme understand and fully support a decision not to go ahead with transplant, knowing that to some the possibility of having to endure what a lot have to endure for years is unacceptable to some.