|
second opinion from University of Chicago
Hi Everyone,
I just returned for an evaluation with the head of the bone marrow transplant at the University of Chicago, Dr. Van Biesen. He looked at my records from my other docs and performed his own bone marrow biopsy. His conclusion: NO EVIDENCE OF MDS. He recommended that I discontinue the Vidaza. Since he couldn't get his hands on the first two bone marrow slides, he told me he couldn't say that I never had MDS. He assured me, though, that I do not have it now. He is going to monitor me for the next couple of months and perhaps do a repeat BMB, but he assured me that he in all likelihood I would not show any symptoms of MDS and would not have to go back on treatment. Has anyone heard of this situation before?
Thanks so much,
Kathy 
__________________
Kathy, 47, diagnosed with MDS IPSS Intermediate Risk, Refractory Anemia and Thrombocytopenia both secondary to MDS. 8/06-treatments include 14 shots Vidaza monthly, aeranesp, neulasta when needed also have polycystic kidney disease
|