I did ask the doc about the possiblity of the MDS returning in a more deadly form that would be resistant to treatment. I had been told by my doc in Indiana that I could never stop Vidaza due to to this. He told me that this happens in only a very small percentage of cases. He said I don't have that type of MDS. One of the indicators he mentioned was no chromosone damage. Still, I am double checking with him. Again, I appreciate your thoughts and concerns. I will keep you posted with my progress. My thoughts remain with all who battle this horrible disease.
Kathy
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Kathy, 47, diagnosed with MDS IPSS Intermediate Risk, Refractory Anemia and Thrombocytopenia both secondary to MDS. 8/06-treatments include 14 shots Vidaza monthly, aeranesp, neulasta when needed also have polycystic kidney disease