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Old Thu Feb 2, 2012, 07:00 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
jgolf

Welcome to our world. I am an avid tennis players. And, when all this first happened to me, I had to give up my singles contract for one season, because with the anemia it was too hard for me and simply not fun. So, I understand your frustration. But, I am back at tennis now and playing some of my best matches every.
you need to be patient to find out what the diagnosis is. Sometimes it takes a while. Some of the bone marrow failure diseases are similar and could simply be autoimmune disease also. Patience is so key here, unfortunately. Just be careful with your low platelets, because a big injury can be serious w/low platelets. Neither "cyclosporine or Prednizone " are cures. Only potential cure is a bone marrow transplant, (IF you have bone marrow failure), and then there is the GVHD, (graft versus host disease)...
This is a great forum to get information from, so keep looking!
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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