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Hi JGolf,
If you are on the west coast, I'd recommend bringing your slides/records to a consult with Dr. Paquette at UCLA. He sees a lot of AA and MDS patients. These diseases are tricky to diagnosis, and it doesn't hurt to have more eyes looking at the problem while you are "stable".
Are you off the prednisone now? It's not usually given in combination with cyclosporine except to treat serum sickness when getting ATG. Having a PNH clone is thought to be an indicator of an immune mediated bone marrow failure. So, the cyclosporine is probably helping you. Your response seems great so far. Maybe you caught things early enough that you can avoid ATG.
Best of luck to you! You are young and otherwise healthy, and that will help you a lot!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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