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Since the pregnisone seems to be turning it around a bit, have they checked into other autoimmune disorders besides celiac's (gluten intolerance). Also, a simple blood test isn't the tried and true way of determining celiac's. There are many who get the blood test only to find out that they do indeed have celiac's when they get the colon biopsy done, but the biopsy usually isn't performed unless you are exhibiting other symptoms as well.
I really am wondering if you may not have some other autoimmune disorder that is the root cause of it all. Read my story all the way through the comments and all and see what you think. What I'm going through now sounds an awful lot like you. I'm currently on lupus meds (pregnisone is also a lupus med, BTW) and doing great. Good luck to you!
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Angie
36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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