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Hi Karina..I'm sorry you've had to find this site but on the other hand, just this morning I was talking to myself and having a small moan about how I wish I knew someone else with a Neuro disease and bone marrow problems and voila....here you are!
I don't have any answers for you and I just want to lend a shoulder to lean on while you are waiting for answers. My problems occurred in the opposite order. Bone marrow failure, then Myelodysplasia, then, neuro degeneration. Now I have both together.
Please keep us informed on how you're going and I wish you all the best.
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