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Old Sat Jun 7, 2014, 11:39 PM
Snuuze Snuuze is offline
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Join Date: Sep 2010
Location: Rio Rancho, NM
Posts: 50
I can relate to your despair and your delight at recovery. It took me a good 8 months from the time of my ATG until I began to feel better. I'm not up for a 4 mile run, but then I'm 72 and I didn't run before!

You're so right. We celebrate the "normal" which other people take for granted. I'm happy that I now have the energy to water my tomato plants every day. Three years ago I didn't even consider planting tomatoes because I knew I couldn't take care of them.

Each person's recovery is different. When we look at the expected turn-around of 3 months and expect that for ourselves, we are doomed for disappointment.

Good for you, Kevin!
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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