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Old Mon Jan 16, 2012, 05:44 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Thanks for the encouragement

Thanks Greg and Karen for taking the time to respond to my first thread. I've visited your personal blog Karen and found it very interesting - amazed and encouraged to see your blood results after treatment - I don't think mine have ever been that good!! However apart from MDS I don't have any other diseases - have always been healthy and lived a very healthy lifestyle.

I see the BMT/drug trials specialist this Thursday. They have the results of my brothers' compatibility tests and it looks hopeful that my older brother is a match.

Have you heard of any complementary therapies which can help - if not with cure, at least with building up the system for transplant? It seems there are natural therapies which break down tumours but nothing much out there for blood diseases.

Hope you are both feeling well ... Cheryl
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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