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Old Sat Apr 7, 2018, 11:37 AM
Joce0910 Joce0910 is offline
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Join Date: Apr 2018
Posts: 4
Quote:
Originally Posted by Hopeful View Post
Hi Joce0910.

I am sorry to read of your struggles at such a young age. Have you had a positive response to ATG? How big is your PNH clone size?

I just wanted to warn you that some experts in the field believe that pregnancy can trigger AA relapse. So be sure to talk to your doctor if you are considering pregnancy before having a transplant.





I have no idea what is my latest clone size i started Soliris yesterday; The doctor didn't like my LDH kept climbing up; I am on clycosporine and promacta but then my hemolysis got worse in the last month and my LDH was over 550. I almost denied the soliris because I read once you start your on it for life unless theres a stem cell transplant
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