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Hi David,
My daughter is doing well, thanks for asking. Her counts are low normal and she was able to graduate from college last spring. She is on a very very slow taper of the cyclosporine.
Regarding your question, Shauna was getting platelets 2-3 times per week after ATG where she had only had two platelet transfusions in total before ATG. Once her platelets started increasing, her counts rose quickly enough that she did not need another transfusion. However, the lowest her platelets ever got was 6 so it sounds like your wife is more severe in that regard. Maybe the severity of her platelet count is contributing to the doctors suggesting transplant? Although it is way too early to say whether ATG has worked or not for her, it is common for doctors to begin a search for a match for transplant concurrently with the ATG treatment. I know that's what happened for Shauna and although none of her three siblings were a match, doctors were able to identify that she had more than one unrelated match about the time she began ATG. It was nice to know that there were options while we were waiting to see if ATG would work.
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Kim, mom to Shauna, SAA 10/2007 at age 19, ATG/Cyclosporine 12/2007, end cyclo 4/2009, relapse 8/2010, and 9/2012, counts recovered on cyclo alone 300 mg/day x 2.
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