View Single Post
  #5  
Old Sat Aug 8, 2009, 11:06 AM
tytd tytd is offline
Member
 
Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
Promacta for platelets

Birgitta, Sorry I mispelled your name. Thanks for the up-to-date info on clinical trials for platelets - will be listening out for more results. I hope you are doing well and I enjoyed reading your profile too. Also your post on Vidaza access in UK was surprising. It makes me wonder about changing some of the health care system in USA.

Kirby, Thanks so much for taking the time again to list your responses to Vidaza, Dacogen and Promacta. I know that your energy must be very low with your severe anemia. I was wondering if you had had your iron or ferritin level in blood checked (or iron stain in last bone marrow) recently to make sure it wasn't low since you had the sharp drop in Hb and platelets. Low iron would be unlikely but possible. My first bone marrow showed no iron stores.
__________________
possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
Reply With Quote