[newfintexas]

Hi Greg, Beth and Linda - hope you guys are all doing fine!! Haven't been here in a bit -

so many changes in hubby's treatment etc in the past few weeks, feel like we are on a roller coaster. He's had 4 rounds of dacogen so far - sept being the last one. Doctor has stopped them...his liver is being affected. Had a second bone marrow biopsy - the bone marrow is pretty much destroyed, he is not making any red cells or platelets at all now..white cells seem to have rebounded but they are very very high constantly. On a good note, blasts are down from 8% to 2% although I am sure some of the reason is due to marrow has stopped producing cells altogether.

We had been looking at a bmt in january but now with the changes we are going to transplant on Nov 5 - only found out yesterday with him being admitted on the 29th for the hard chemo. Scary but dh is staying positive saying worrying will not get us anywhere and we can only do everything possible and pray that we will come out on the other side without all this mess. We were so lucky, actually found two perfect matches - what kind of miracle is that?!?!?! So one will be kept on standby.

He is only 57 and it's hard to believe we only found out he had MDS in July...so much has happened, feels more like 3 years instead of 3 months.

Greg the wheatgrass seems to be working, iron has not been an issue even with transfusions of either red cells or platelets being every few days. Thank you so much for letting us know. By the way, one of the techs really believes in sunflower seeds for platelets although since hubby is not producing any it's a mute point. But maybe someone out there will luck out by trying it.

Is there anyone else that has gone through recently or going to go through a BMT soon? Would like to get thoughts, scary when you feel like you are alone going through this. Our family is not near us, so it's just the two of us although our grandchildren 3 and 5 along with their mom and dad are coming next week from Canada to have a few days with us before Papaw goes into the hospital. Really looking forward to that. We are used to seeing them every few months but know that with the BMT it will probably be much longer this time, so we are so grateful they are able to make the trip on such short notice.

Good luck to everyone out there! Keep up the fight! and stay in touch, this is a great forum. Laura