Catherine, I've never heard of anyone paying for their research blood tests either. I think the Prof is trying to get me to cover some of the costs just to keep the lab interested in doing the research because the amount of people this research would help is probably very small.
I didn't end up getting a new handbag but I did get a couple of new blouses even though I feel like I'm incredibly overweight and nothing fits well or looks good. InterEstingly the Prof wouldn't give an opinion on the weight gain but the surgeon blamed it jointly on my immobility and the steroids, which he said was "a large dose".
We are having an unusually dry start to our wet season and I need to water the garden but I have to be a bit sparing because water costs me about $320 every 3months and it's rumored to be due for a hefty increase. (isn't everything?).
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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