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Lower risk MDS
Hi tytd,
You know that I was txs dependent from dx 2006 with a HGB of 7.0. After 4 years of supportive therapy when I had to have txs once a week I accepted Thalidomide + Prednisone 2010.
After 3 months I didn´t need txs until Feb 2013 when my HGB had decreased to 8.7. I got 2 units of PRBC but my HGB decreased to 7.5 due to hemolysis.
Now my blood is genotyped and I always get very fresh blood - 6 to 9 days old.
I had been treated with a very low dose Thalidomide - 50 mg 4 days/week - due to low neutrophils. Now we try 50 mg Thalidomide/day + Prednisone. I have to take Zarzio (like Neupogen) once a week to prevent neutropenia. Then I get Desferal 4 days in my port in connection with txs for iron overload.
Since dx I have felt fine except when I had neutropenic fever 2007. I get txs when my HGB is about 8.5.
Hope your HGB will hold!
Kind regards
Birgitta-A
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