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Old Mon Jul 7, 2014, 02:11 PM
Specialk Specialk is offline
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Join Date: Jul 2014
Location: Las Vegas
Posts: 3
2 years, no answers

History: septic hip at age 6, chronic sinusitis, (monthly sinus or tonsil infections given antibiotics and steroids, asthma, chronic tonsillitis, thrush, daily fevers 100-101 even with Motrin and/or Tylenol...2 years ago I was admitted to ICU with WBC 0.4. No infection found, severe pharyngitis and thrush. Followed up with specialists with no conclusion. Hysterectomy last year due to endometriosis. Then March 2014 severe pharyngitis WBC 0.5 again no infection present!! I'm 36 and feel like I have the flu 24/7. Achy, can barely get up or walk in the morning due to extreme pain. Diagnosed with Celiac disease 13 years ago, did not follow diet until 2012 when diagnosed with gastroparesis (I will puke up a meal 27 hours later undigested) severe migraine/cluster headaches possible damage to vagus nerve from celiac.

WBC counts are typically 1-3 all the way up to 44 with no infection, steroids, or nupogen, but mostly below normal. So, I've been advised to stay home, away from sick people, wear a mask when going to appts.... Last hospital stay found Small malignant lesion on right kidney and ulcer.

Bone marrow report reads: hypocellular bone marrow with maturing trilineage hematopoiesis. Reduced histiocytic iron. Heterogenous B, T, and NK lymphocytes. No focal lesions found.

Returning to ucla tomorrow ( after two years of fighting to go there after having 12 specialist manage my care here with no diagnosis) for follow up but I want an idea of what I'm in for! Two years of being on edge of "will this be the fever that kills me" and I've gained 40!!! Pounds in 6 weeks and I barely eat or hold food down. I've never weighed this much in my life, avg. is 115 62" tall

Any thoughts appreciated Kellee
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