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Thanks Marlene
Thanks so much for the advice. I have just gone to part time work to try to get my body healthier. Its time to take care of it, instead of abusing it!! If my disease ever progresses worse, I'll take your advice and go to John's Hopkins if its a government agency. Do you know if it is?
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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