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Hi Vikas,
Just wondering how is your father WBC, platelet and other blood test results ?
As you mentioned that your father hemoglobin before transfusion remains at around 7.1, is that mean if he doesnt go for BT, it will always stayed at around that levels ?
I am curious about your father symptoms as it looks quite similar to my mom's symptom besides not knowing what is your father other blood test results.
My mother has low Hg, the lowest was 5.05 two months back (The rest of the blood test results looks okie) and she needs 2 units of blood every month. When she was on 5.05, she still feeling okie besides complaining soreness on her legs. This month her Hg is pretty good, back to 6.67 before BT. I dont know why it was fluctuate so much but anyway we feel good to see the number increase back up.
Currently she is on wheatgrass (Started 2 months ago), sunchlorella (Supplement), EPO and Ferriprox (Iron Chelation Drugs).
If you have the answer about why the doctor wants your father to try Dacogen, please do share with me. I am interested. Thanks in advance.
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Teo, son to Goh, age 71 dx mightbe MDS with low HB & RBC Jan 2012; FE 7755 on Nov 2014 - 6*500mg ferriprox; BT every month since Feb 2012; BMB done July 2013 - no conclusive evidence of MDS or PRCA; EPO stopped Nov 2013; Danazol 200mg*2 starts Nov 2013 + cyclosporine 25mg*4 starts June 2015
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