[ececim]

My mom had high risk mds. She didn't get any drug till her last month. she lived two years without drug, just with blood transfusions. When she got dacgoen, her immunsystem decreased and then she had pneumonia, after pneumonia unfortunataly she passed away.

When she died the doctor told me that normally if dacogen works for a patient , it will be maximum for a year.

So, I mean dacogen isn't real solution for mds or aml. This drug had a lof sideeffects too. But there are only two drugs for mds. Dacogen and Vidaza. It's really hard situation to choose the best way. Because there is no best way.

If your father has low risk mds, ı recommend to you supportive therapy with iron celetion. I can tell from my experience, Dacogen must be last alternative.