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Old Mon May 31, 2010, 07:01 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Jeffsam.

I had TBI and high dose conditioning before my transplant in 1998. I was very light sensitive while I was in the hospital and had to keep my room dark and the blinds drawn. As I recovered, my sensitivity decreased but I still prefer the lights dim for TV watching and always wear sunglasses outside. I am not an athlete, but I don't think a condition like mine would prevent me from participating in a sport I love.

More bothersome than light sensitivity is chronic dryness that requires over-the-counter drops several times a day. Many people are able to reduce the discomfort of dry eyes with Restatis (cyclosporine in eye drop form), but I find it burns too much to be worth the improvement. I've got punctal plugs in my lower tear ducts, which helps some, but I rely on eyedrops for comfort. To continue kitesurfing after your transplant, you might need to invest in goggles that keep your eyes tightly enclosed so that no moisture escapes.

Hope this helps.
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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