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I read your previous posting on the Danazol thread
Hi Lou, I just re-read your previous post on the thread and you are the one most like me, both of our fathers passed away  (. You and I both have pulmonary fibrosis too. I hope that's not why your lungs are so bad off. I was looking at the research Dr. christina Garcia is doing, she'd doing one that involves NAC to help lung function. I am taking 600 mg three times a day, and I feel like its helping. Hope you can try it too, you need some hope...hugs, Linda
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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