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Old Thu May 26, 2016, 12:32 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Jordan's Mom. As someone who received stem cells from an anon. donor for PNH, myself and others are truly grateful for people like your daughter. I spoke to someone who was donating for a stranger at the same hospital where I was treated, and I told the donor and his mother the same thing. I have submitted a letter to my anonymous donor, but I have never gotten a reply. I only know that they are male w/ a diff blood type than mine, and from the U.S. A nurse from my clinic who helped coordinate everything told me that my donor was such a good match that it would have been nearly impossible to find an equivalent donor. I would very much like to meet my donor and thank them in person, but I'm assuming that they will choose to remain anon. It's an odd feeling knowing that someone whom you have never met is a part of you.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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