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I think I was lucky to have consulted a surgeon who has a friend with neuro sarcoidosis and he knows first hand how important it is to be able to retain your mobility as long as possible. The Nurse Practitioner also has a mother who has Neuro disease and has been using a wheelchair for many years and knows the difficulties of transferring around from bed to toilet etc.
I'm a little nervous but also excited to have hope that I might see some improvement.
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