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You are correct that NIH is still accepting patients in the Promacta clinical trial. We were there in Nov. for Don's 3 month check-up and they told us it has been so successful, they were trying to expand the trial.
Even though Don's counts are normal (except platelets but they are over 100,000), they told us as long as we are willing to come per protocol, they will take us. They are truly on the cutting edge of these diseases and we are very fortunate to have this security in the future. And of course, because it's a clinical trial, all of the medical treatments and meds have been free to us. What they have done for Don since 2009 would have been quite expensive had we been paying for it.
Best of luck!
Sally
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