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Old Mon May 15, 2017, 10:53 PM
Bossywife Bossywife is offline
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Join Date: Apr 2015
Location: Canada
Posts: 103
Doesn't want to know

My husband cancelled his myeloid gene panel test in June. He told me he doesn't want to know if he's dying and he's afraid of they start treatment, he will start feeling crappy.

I'm torn between respecting his wishes and frustrated that he thinks treatment will make him feel worse. I have read only good things. Or am I in denial. Ugh.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation
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