[DanL]

This is a tough situation. I think that I understand your husband's position as I had a period of time of continuously worse news that seemed to last for over a year -every time I went in, there seemed to be something else. It is hard to stay positive in the face of a news cycle that is dark. That being said, ignorance of a problem will not make the disease disappear, and foregoing treatment may or may not improve quality of life. What I can share directly is that treatment with Vidaza and Rituxan had very little negative impact on my quality of life, and I have met several people whose lives have either stayed the same or improved and probably lengthened as a result of treatment, and a few who have seen an overall decline with the former group being the larger number.

It is a highly personal decision, but I would say support him and give him time and data to get there. I always reverted to facts and best-odds to reinforce my conviction about pushing forward.

I wish you and your husband strength, courage, and conviction with any decision and action you take.