Personally, I've always known that a "potential match" only means that the person is registered as a "Potential Donor" but that does not guarantee that they will be available or willing should they be called upon. I think most people who register do so with the intent to follow through if need be. But, sometimes for various reasons they're either not able to or not available. I can respect that...
I am thankful for the registry and for those who have willingly and voluntarily listed themselves as "Potential Donors". Bless them!
We were informed that my son had 2 potential 9/10 MUD's on the registry. They were not informed because we still had other options to explore before considering this route.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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